Rare Disease Program Needs Congress To Act To Keep Key Drugs In Development

Rare disease program needs Congress to act to keep key drugs in development

KSTP 5 Eyewitness News

Funding needed for childhood rare disease drug development

KSTP 5 Eyewitness News

Defining Rare Diseases and Orphan Drug Act

What Everyone Affected by a Rare Disease Should Know About the Orphan Drug Act

National Organization for Rare Disorders (NORD)

Rare disease and orphan drugs: industry executives at World Orphan Drug Congress USA

biopharmachannel

Rare Disease Drug Development Education Series Trailer

National Organization for Rare Disorders (NORD)

Drug Development for Rare Diseases: A Community Conversation

National Organization for Rare Disorders (NORD)

Rare Disease Drug Development

U.S. Government Accountability Office (GAO)

Soligenix (NASDAQ: $SNGX) Unveils Two-Pronged Approach To Tackle Rare Diseases & Unmet Medical Needs

Benzinga Partner Studio

Enobia & LapidusData on history and epidemiology in rare disease at World Orphan Drug Congress USA

biopharmachannel

Rare Disease Patient Registries: Key to Drug Development and Access

Canadian Organization for Rare Disorders

Rare Disease Challenges in Each Step of the Drug Development Process

National Organization for Rare Disorders (NORD)

2023 Rare Disease Week - Deep Dive Policy Ask #2: Appropiations for Critical Rare Disease Programs

EveryLife Foundation for Rare Diseases

New Rare Disease Drugs and Research Advancements

Rare Disease Research on World Stage

The Balancing Act

Orphan drugs and rare diseases: pharma executives at the World Orphan Drug Congress USA 2011

ACTION NEEDED: Orphan Drug Tax Credit Update

National Organization for Rare Disorders (NORD)

From Data To Cures: Speeding The Way For Rare Diseases

National Organization for Rare Disorders (NORD)

EveryLife Foundation for Rare Diseases - Scientific Workshop 2024

EveryLife Foundation for Rare Diseases

Confronting Barriers to Rare Disease Treatment

National Press Foundation